This our first NDC in Conversation, a new long-form blog + video format where we bring together diverse voices from the Neurodivergent community to discuss key topics. You can also watch the the full video of this discussion below or, on our Youtube Channel. For this inaugural discussion, held to mark Autism Acceptance/Awareness Month, El Dewar is joined by Kay Aldred, Adam Fare and Charli Clements to discuss Autistic Joy. At Neurodiverse Connection, we're responding to Autism Acceptance/Awareness Month with content looking at how we can go ‘Beyond Acceptance’. Check out the other Beyond Acceptance articles on our blog. Q1. What does Autistic joy mean to you?
Adam Fare: The word joy is sort of quite a meaningful word for a lot of people. For me, I see it more as just accepting who I am and the way I am as a person, the emotions I have or don't have. I think the main times of joy is when I'm actually talking with other Autistic people and we sort of bounce off each other, that’s when I come alive. But in terms of the day-to-day joy, it's more my acceptance for myself. Kay Aldred: Yes, I feel really passionate about Autistic joy, because joy was an emotion that I didn't feel until probably five years, six years ago. And I'm a lot older than you. It took me longer to get there. I feel really emotional even just talking about the concept of joy because it is our birth right. As humans of all neurotypes, our joy is our wellbeing. I think joy is a very internal experience. Happiness is quite externally stimulated, but joy is something you bring, it opens out of you. I get really emotional when I talk about this. Autistic joy is a beautiful type of joy to watch and see because generally it's highly expressive (although not for everybody). There's often a lot of movement with it. So, whereas we might stim to regulate, we might also stim in our joy and feelings of belonging. There's not many places that I feel safe enough to be fully expressive in my joy without wondering ‘how much can I express about how passionate I am about that’? For me it's a very inward experience and it took me a long time to get to a nervous system state and non-trauma state to even feel that I had that real expression in me. El Dewar: I think that in the Autistic community, so many of us grow up and are late-stage diagnosed or, like me, are self-diagnosed. So many of us spend years asking ‘what's wrong?’, repressing and masking. And when you find that community, when you find that joy, it's like a well of hope. It's a well of support that we haven't had. And I think that's one of the wonderful things about the Autistic and wider Neurodivergent community and Neurodivergent movement. Q2. Can you share some moments or situations in your life when you experience that feeling of autistic joy? Charli Clements: I think the main example for me is with live events that relate to my special interest. So certain theatre performances, concerts are a big one. I've been to live gymnastics because world gymnastics is one of my special interests - It’s a bit rogue, but there we go! Even though I find those environments quite overwhelming and I need quite a lot of adjustments to engage with them, once I'm accommodated and comfortable in that environment, it's very all-encompassing. It's the sensory experience, as well as engaging with the interest itself and being amongst other people who are interested in it in a way that you're not normally. For me it’s like stimming or info dumping – my interests get to come to life in a way that they don’t when I am just sat at home. Being in these situations brings it to life. ED: It’s when you meet those other people who are as interested in your specialist interest as you are, and suddenly you're talking at 200 miles an hour and everyone else around you is wondering if you've just learnt a new language. I go to gigs quite a lot, particularly death metal and punk gigs. They're really sensorily intense environments, but (once I've got spaces that I know I can escape to if it gets too much) it becomes a place of joy and of celebration. It's almost a healing experience to have that joy in that way of expressing the things we love. I wonder if we might talk about the embodiment of joy and how that feels? KA: For me, embodiment is the well of joy in our body, the well of our being and our true authentic, unmasked self. And for me it feels like something that moves upwards through the body. It's a kind of warm space in the heart, but it also goes beyond that. And I don't know how often we see it in Autistic adults—or even in Autistic children. It feels like joy is not particularly prevalent in our society, anywhere. But I congratulate the Autistic community in their expression of Autistic joy, modelling to the rest of humanity that there's a possibility that we can uncouple from the low vibe of society and come into joy. "We may act differently, but we all have an amazing, significant, integral part to play in in this diverse and functional society that we are striving for." — Adam Fare Q3. How can embracing Autistic joy help us move beyond the idea of acceptance and be used to support Autistic rights and stimulate progress for the Autistic movement? AF: We want to go beyond acceptance. We want advocacy, we want justice and liberation. That's what we need to be aiming for. I'll admit that I'm still on my personal journey to find that real joy. Life circumstances have meant I can't get there yet. But I think seeing others who have that and seeing those people speak up and be brave enough to talk about it, that empowers others to talk about it too. And whilst I don't think society should need people within the Autistic community to talk about it for them to get onboard, I think it is required with the way society currently is, because it is - 'we don't see it: we don't care about it’. If you're only accepting someone, you're not actually empowering them, you’re not giving them the justice that they deserve, not even giving them the equity they deserve. You can accept someone for who they are, but not give them any adjustments and accommodations or anything to actually help them become their best self. I think by embracing the idea of joy for whatever it means for each individual, it allows people to come out of their shells and show their true selves, which then empowers others to do the same, which then actually makes the rest of society see that we are just people who think differently. We may act differently, but we all have an amazing, significant, integral part to play in in this diverse and functional society that we are striving for. We see all this horrific stuff in the news about disability, about Neurodivergence, about oppression, about marginalisation of communities. That is a smokescreen to what is actually happening which is that we are on the on the path to progress. It's just the minority shouting louder because they don't like that privilege being challenged. So the more we can shout and the more we can advocate and empower each other, we will overcome that. It will be a bit rocky, but we will overcome it. "…and then we get into inspiration porn: “this person might struggle, but look how many degrees they've got!” And as somebody with quite a few degrees, my degrees do not help me go to Sainsbury's by myself on a Saturday morning!"— El Dewar CC: For me, it's that society is so insistent that Autism has to be this ‘deficit’ that we've got to cure, that we've got to get rid of that we should not be enjoying. “You should not be proud of it, it has to be gotten rid of” or it's this “superpower” that we have to use in the workplace to boost productivity, to capitalise on it. And it can never be just this middle neutral diversity. We aren’t allowed to just be. It has to be one binary or the other. I don't agree with that at all. I talk a lot about neutrality and I personally love being Autistic. But even if I didn't, there's so much more nuance to the conversation beyond it being one way or the other. I think with Autistic joy, it's about people understanding the importance of it, the uniqueness of it and understanding that wider ‘spiky profile’ concept. There's nothing wrong with our spiky profiles in comparison to a neurotypical peer in terms of our skills and our needs. Autistic joy is really part of that. And with support that can be such a huge part of a really fulfilling lovely life to live. But we're not given that at the moment. We're so rarely given that opportunity and the support to make that really lovely thing. At the moment it is masked, or seen as childish, or considered something that you shouldn't be engaging with. But actually in a better society and in a more fulfilling society, it would support us to engage with education and hobbies and interests and all of those things that at the moment we are often so pulled away from because we're not allowed to just be who we are. ED: I think coming off that there's a big issue around not being allowed to be mortal: it's either the ableist concept of “you must be so disabled, you must not want to be alive”, or “you're so superhuman, it must be wonderful to be you”. And then we get into inspiration porn: “this person might struggle, but look how many degrees they've got!” And as somebody with quite a few degrees, my degrees do not help me go to Sainsbury's by myself on a Saturday morning. So we can use Autistic Joy to say that yes, we have issues, yes we have problems that can be very disabling (I think one of the things we see sometimes in the Autistic community is ‘Autism isn't disabling’, but for me, yes, it is), but we’re not superhuman either. And I think it is really important to just be mortal, to have joys and have days that are bad. Joy for us is about being glad that we are alive and glad that we have our specialist interests and building a community around that. KA: As an ex-teacher, one of the main goals of the education system, in my experience, is to quash joy—particularly embodied joy—in all Neurotypes. But particularly the neurodivergent expression of joy is really hammered out once you go to pre-school. I spend a lot of my time envisioning what education could be like if we base it on enjoying and following the trains of our interests, thoughts, impulses and longings. And I really believe we can have a functional learning environment based on themes or topics that people bring and spark off. It can happen, but it requires thinking outside the box within the educators and creativity – which is the landscape of joy anyway. Q4. How could we make Autistic joy a wider community action? KA: Love is the common thread of belonging. When I'm in my Autistic joy, I'm connected and my heart is like Wooosh really big now. I take that in and it happens to me daily. It's happened to me today. I take that into an environment where there are non-Autistic people and within I can feel now straight away what that does to me, to my heart. I'm perceived as different and it closes down, I shrink and I compress. So how do we take this into communities and belonging? We have to ally, we have to link our arms and, and the hold tight that we're able to stay in our joy. To become this force that pushes it out, to push down the forces that want to close it down. It comes back to what Adam said, it's a liberation action. And liberation can only happen in community and that’s holding each other tight as we move forward. AF: I completely agree with you Kay. I think the first step is we need to try and help bring others along in the journey with us. Non-Autistic people, the people who are ableist but they don't know they're ableist. They are the people who see the fact I’m Autistic as a superpower. So I'm a big fan of sort of what I call grassroots movement. We need to build from the ground up. Sometimes we have to advocate for ourselves as well and actually just stick our heads above and just go - this is me, like it or not. Because if you go, this is me, someone else will also feel safe to go - this is me. And then you've already built a community who can then come together and you realise there's a lot more in the community than perhaps you first thought. And so that's how we click with each other and I think by building that community from the ground up, you almost force everyone else to come along with you because you show them that actually there's nothing wrong with who you are. It naturally breaks down the barriers when you come together and when you are unapologetically yourself. Yes, we need more than acceptance, but the first step is acceptance. The first step is that people are accepting who we are because then they will start fighting with us, not for us. We don't need people to fight for us but people to fight with us. I don't want someone to speak for me. I want someone to speak with me. I think that's what we need as a community. ED: I was thinking this earlier about a comment that you made about inviting people to the table and that at the moment people are being invited to the table. But it's almost like we'll invite you to the table, but woe betide you if you need a gluten free meal. And what we need to get to is the point, where it's not it's not your presence at the table is tolerated, but woe betide you if you need something different. It needs to become more a case of welcome to the table, who are you and what do you like to eat? CC: I think for me, a big part of this is meeting people where they are and helping them undo internalised ableism and lateral ableism. I think the community has a big problem with lateral ableism and I think we’ve all been guilty of it at times in our journey, where you've spent so many years of nobody understanding you. Actually there is a whole community of people that either get it or get it to an extent or want to meet you where you are. But it's very hard to open yourself out to that. We have a lot of lateral ableism about different support needs. We get lateral ableism because, as an Autistic and chronically ill person, I'm often saying actually that advice or that system is not going to work for me because these things clash. I need this instead, and people just can’t relate to that. They just don't feel like I am welcome in that space. I think really meeting people where they are to undo that and understand liberation and understand that wider community outside of where they're coming from. It's very hard to find an untraumatized Autistic person. So, there's no real wonder that people are coming to the table feeling the way that they're feeling. But I think meeting them, feeling like we can support them to undo that and being open to constantly learning. Q5. What would you say to someone else, or to your younger self, struggling with feeling Autistic joy? KA: Oh God, go slower, go slower! Don't believe the Neurodivergent community is going to be like you. Or give you a role model, or a pathway to follow and also people's hearts aren't open. Charli, I wish I'd spoken to you more, also because I’m chronically ill as well and I don't go out that much. Don't think just because you're unmasking and then take yourself out, you're going to be met with acceptance and belonging. So I don't mean to be negative, but it's I think it's that's realistic in society. I hope someone can offer something a little bit more positive, than that. CC: I think for me it's understanding again how much you actually have to uncover and understand in that pre-identification, diagnosis or whatever. You've been under so much pressure to be someone else that it makes total sense as to why this wouldn't come naturally. We talk about late diagnosis and stuff and obviously for some people that is much longer than others. But for whatever amount of time that's going to be a lot of trauma and a lot of pressure. So, it makes sense that this wouldn't just come naturally one day. And I think going slow, going gradual, starting to just unpick the things that you have control of and that make you happy. And just kind of going from there - doing these things with people who feel safe, who understand you, who will accommodate you, who will get you out of a situation if that's what's needed. Having that sense of safety, although it isn't something that is inherent, it is something that you can begin to build, whether in your community or with people around you or just within yourself. Autistic joy is a very all-encompassing, intense feeling, so it makes sense that it’s not going to be immediate when you're in a body that's been traumatised and under pressure. AF: I'll go back to the first moment I burnt out, around 11 or 12, which is where all my issues started. And first thing for me is find where you feel safe, the people you feel safe with, the activities you feel safe doing. For me it's all about safety and finding your community. Don't just find the Autistic community, find your community within, as the community itself is quite a monolith sometimes and can have some very binary viewpoints within it. Be kind to yourself, there may be a form of grieving process, especially as you find out, you’re not the person you thought you were. All the things that you thought you could do, you might not be able to do. Just be kind to yourself within that. I think it all links to safety—feeling safe and being safe. If you can find that safety, not all the time, it's not always going to be safe, but if you can find that safety to go to when you need it. I think that's the main thing. ED: So I think what it all boils down is that Autistic joy is a catalyst and a place that takes us somewhere where we feel safe, where we feel supported, where we have that community, and something we've come back to again and again is that having Autistic joy is a place where we can love and we can feel loved. This is a repost of a blog originally posted here: https://ndconnection.co.uk/blog/autistic-joy-roundtable?rq=aldred Original post date 30th April 2024.
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Embodied Education Dan and I are delighted to be presenting about Embodied Education in Glastonbury in May and then in Oxford in September. Glastonbury: A day workshop Dan & I are co-facilitating in Glastonbury on Mon 27th May. Further details & to book https://goddesstempleteachings.co.uk/radicallyembodying/embodied-education/ Join Kay and Dan Aldred to learn about their @girlgodbooks book Embodied Education: Creating Safe Space for Learning, Facilitating and Sharing, and vision for a new educational paradigm based on wellbeing, co-regulation, and creativity, which advocates for body-first, relational and embodiment approaches in organisations and communities. Explore practical strategies for the creation of organisations and spaces which are trauma-informed and neurodivergent, sensory, and nervous system friendly, and which celebrate and encourage individuality, divergence, and innovation, alongside exploration, discovery, and imagination. Suitable for anyone connected to schools, universities, youth work, teaching, home-schooling, unschooling, health and social care services, charities, social justice, parenting, holistic health and therapeutic settings, religious, and spiritual spaces. Oxford: Creative Bridges 2024 Embodied Consciousness, Psyche & Soul Research & Practice @eurotas.world & @aleftrust Super excited to be offering a presentation as part of the Transformative Education Track of this conference in Oxford in September. Further details & to book https://eurotas2024.com/ Final reminder about this year's @the_pdaspace summit 26th - 28th April at which Dan & I are presenting on the importance of self regulation for educators, spaceholders & facilitators. Join the summit here https://www.thepdaspace.com/summit-2024 Knowledge & decisions derived solely on rational, logic & 'disembodied' thought without any conscious reflection - #metcognition or, input from emotional intelligence - #intuition or, reference to body wisdom - feeling, sensation & #instinct ... is at best #base & #basic and, at worst is sociopathic, psychopathic & dangerous and, therefore, a real threat to humane, humanitarian, humanity. The rational logic of disembodied minds (created & groomed by our colonial #educationsystem #schools #academia #universities) got us into this mess. Return to the wisdom of the body-mind Wakey wakey all bodies. Your wisdom (your pain, fatigue & rageful objections and/or your resistance, pleasure seeking & desire) is needed right now! All bodies - I / we - need you to feel, emote, sensate. All bodies - your feeling, sensation & emotional intelligence is the glue to re-membering the wholeness of the body of our common humane, humanitarian, humanity. All #bodies - #wakeup & #liberate Systems groom us in disembodiment & cause soul loss. The sterile hospital of our birth, the school & university where we are educated & then our workplace - they're predominantly survival energy (fight/flight) driven & spiritless environments, where our bodies are 'disciplined', 'coerced' & 'measured' & we are told what to think & do, plus how to behave, speak, act. Soon the stress of our culture, the media & the overarching body phobic, fear based attitudes of mainstream religion mean we collapse into freeze & fawn, spiritless, terrified, & now numb to the screaming objections of our bodies. We exist zombified, no longer connected to soul - our wordless, creative, life essence - which is only able to express through our bodies - movement, emotions, imagination, sensations & so we are lifeless. Soulless, lifeless & spiritless bodies are controllable, codependent & do bidding of the groomer. And that is why our spiritual needs & embodied human needs are inextricably linked. There's no separation. I've spent the past 12 months (un) learning & I've barely scratched the surface. I visited @ashmoleanmuseum in Oxford last May & marvelled at the treasures of antiquity from cultures all over the globe but the ache in my heart & discomfort in my gut were strong. Instinctively & intuitively it felt wrong. I wondered : How did these objects get here? Why are they here? When did they arrive? To decolonialise requires consciousness, awareness appraisal & reflection. It requires effort & commitment. It requires an assessment of privilege & processing layers of shame, disgust, horror. It requires repair. To decolonialise requires going beyond standardised white, colonial, imperial 'his'story & this means seeking marginalised sources, texts, voices. It requires trusting instinct & intuition - the twinges of ick. It requires being unpopular, being labelled wrong & going against the status quo. It requires change. And I've barely scratched the surface & it's a pandora's box. And, it's not pretty. It's a continual unravelling. Education, academia, Church, contemporary spirituality & the wellness industry have all reinforced the colonial agenda & have all been areas of society I've invested in trust, time & energy wise. As @sofiaakel writes .. "When many of us reflect on our journeys through compulsory, further and higher education, we don’t often recognise the knowledge we gain as inherently political. But it is impossible to divorce our worldview – including our political and moral values – from the subject matter we’re taught. If we don’t challenge the colonial roots of our education, we are ultimately breathing life into an ideological framework borne out of an empire steeped in blood. The task then, is for each of us to consciously and intently work to decolonise both our own minds and the institutions that uphold this. There are revolutionary futures that we can imagine for ourselves through alternative ways of understanding the world that do not start, end and seek validation from darkness." Revolutionising systems, structures & institutions in society is a spiritual imperative. Our current education system here in the UK & anywhere else where the system has colonial & industrial roots is harming & traumatising children & young adults - physically, emotionally, intellectually AND spiritually. It's causing 'soul loss' - a disconnect from their bodies, lifeforce spirit & creative soul. We need to embody education - reanimate learning - teaching interconnectedness of mind, body, soul, spirit, And, teach the interdependence & interbeing of individuals & the earth & community. The future = #embodiededucation #embodimentspirituality Final reminder & spaces left for this two day workshop I'm co-facilitating with Dr Lynne Sedgmore, CBE, in Glastonbury on Sat 25th & Sun 26th May. *** Full details & to book https://goddesstempleteachings.co.uk/radicallyembodying/ *** Understand and practice what it means to be a fully embodied sacred woman, priestess and leader, in the world today – with all its challenges and complexity. Explore how this can be done effectively and sustainably, with integrity, living from our authentic wholeness, power and neurodiversity. When we can fully embody our life purpose, authenticity, spiritual practices, and devotion to Goddess, we can truly express, and accept, all the different parts of ourselves. *** We can then engage profoundly and effectively with community, social justice and ecological activism, as well as within our daily lives *** Embodiment Spirituality SST : So, I presented at the #SST24 @sst_theology two concepts: 1️⃣ Tangible Divinity #tangibledivinity 2️⃣ No Words Theology #nowordstheology These are lived experience, embodiment theologies, rooted in #embodimentspirituality & resolution of #trauma in what I call our Divine Nervous System #divinenervoussystem Theology meets #embodiededucation & the #polyvagaltheory & becomes a no words study of locating the divine #inandthrough the body within our #fleshyknowing Thanking all the scholars, teachers, mentors (some mentioned below) whose work this is built on & the women who contributed shares to my @girlgodbooks book Making Love with the Divine: Sacred, Ecstatic & Er0tic Experiences Audre Lorde, Lisa Isherwood, Elizabeth Stuart, Marcella Althaus-Reid, @drpeteralevine Dr Stephen Porges @polyvagalinstitute @irenelyon @gabormatemd @blackliturgies What did I learn from presenting at a highly prestigious academic conference? I spoke last week @sst_theology #SST24 conference about the concept of NO WORDS THEOLOGY. Studying the divinity & spirituality of lived experience : a theology forged within & from embodiment. I realise now that this is a paradox. Because: * Academia & theology are dissociative disciplines - separated from & 'othering' of the body & emotions (which they pathologise, infantilise & dismiss). * Lived experience is not considered valid or 'evidence'. * Theology is about theory not the reality of the embodied experience of divinity. * Theology (in the UK at least) is primarily the gate keeper & endorser of the Church & its hierarchy, doctrine & dogma. * Neither academia nor theology value innovation, creativity or exploration. * Neither academia or theology are self reflective or emotionally intelligent, & neither can speak to or understand (or are interested in learning about) the body - it's intelligence, wisdom & depth. * Academia & theology are closed, insular, systems & echo chambers, which are inherently colonial, imperial, patriarchal, ableist, elitist, exclusionary, mind dominant & body phobic. * Academia & theology are stuck in the dark ages & dying systems, like many others in society. They lack consciousness & awareness, & seem so archaic to me now. Embodiment Spirituality - so what is next?
Radical (returning to the roots) rethinking & reinstating women as spiritual leaders. There's a template. Edited extract from my MA essay Recovering Mary Magdalene written in 2005 "when we look at the scriptures in the light of the first century understanding of women, we see a radical new movement. A title recovered and given to Mary Magdalene is that of apostle to the apostles. In the early centuries of Christianity, Christians made pilgrimages to Magdala to venerate Mary Magdalene and to experience the resurrection as she did: living an erotic, spirit filled, life. Jesus encouraged gender equality in discipleship and spiritual leadership. Malone writes, “Bernard of Clairvaux in the twelfth century as well as many other writers both before and since have called Mary Magdalene the apostle to the apostles” I hope you enjoyed this newsletter. Best wishes, Kay x In the current ‘industrial’ [1] educational paradigm, schools aren’t accessible for autistic people. They both contribute to and cause trauma for autistic individuals. With reasonable adjustment and an embodiment focus, steps can be made to begin to change this. However, a wholesale reform of the educational system, is what is actually needed. Trauma is anything which is too much, too soon, too quickly. For autistic young people the pace of school alone, moving from lesson to lesson, hour after hour, without decompression and processing time, stim or sensory breaks, is ‘too quickly.’ The sensory environment is ‘too much.’ Young people experience similar sensory issues in schools as they do in other large scale societal institutional settings [2]. The sounds (bells, class sizes, scraping chairs and desks - the collective sound generated), the visuals (bright lights, the paint colours and busy wall displays), the sensations (scratchy, synthetic fibre uniforms, hard plastic chairs, sitting still for long periods of time), the smells (toilets, dinner hall, disinfectant) – all of these contribute to dysregulation and overload and that is before we even consider the demands of social processing. In schools there are people everywhere – lots of people - too close, bumping into us, talking to us. There is nowhere ‘safe’ to go outside of lessons, during the challenging unstructured times during the school day, for quiet time. Libraries, which used to be an optional safe haven are often shut, at short notice, causing more distress and unpredicted change, due to staffing shortages, or alternatively become social hubs. There is no option for down time, to follow our own rhythm, and honour our own pace – especially around extra time needed for processing information. Content delivery in class, due to curriculum and exam board syllabus demands, becomes a ‘too quickly’ experience. There are pages of text and oral information to take in, understand and process every lesson. We move though the day in overwhelm. Our special interests are irrelevant to the compulsory and prescribed curriculum. Plus, the focus is on exams and content recall rather than exploration, curiosity and creativity.
We are put into groups to work with people who don’t understand us (and don’t care to understand, as they are understandably focused on their own experience, particularly when adolescent), or our communication preferences [3]. There is indirect or implied communication from peers and teachers alike – it’s all ‘too much’. We experience the Double Empathy problem [4], interpersonal violence, bullying and so mask 195 days a year – all of which impacts all aspects on our health negatively [5]. Schools getting it wrong for autistic young people increases the need for mental health intervention and has repercussions for health services. Everybody is stressed. Teachers are under immense pressure – Ofsted, exam grades, workload. They often don’t have the headspace, knowledge or time to consider or even know how to consider reasonable adjustment. The focus remains on student behaviour – which is ‘managed’ (controlled) and young people are ‘moulded’ (modified) into the standardised product of an ‘exam answering machine’. And, by the way, this doesn’t work anyway for autistic people, as our brains do not habituate – behaviourist and modification approaches are indeed harmful [6] to us. A wholesale cultural shift and reform is needed in education to a body first and co-regulation focus – to embodiment and relationship approaches – which would benefit and see better holistic outcomes, for all neurotypes.In the meantime, what are five actions which can be taken to mobilise reasonable adjustment and which schools can begin implement to make schools right, or at the very least, less traumatic, for autistic people - students and teachers alike?
[1] https://www.youtube.com/watch?v=iG9CE55wbtY&t=14s “So schools kill creativity?”, Sir Ken Robinson TED Talk, YouTube [2] https://www.ndti.org.uk/resources/publication/its-not-rocket-science “It’s Not Rocket Science” Considering and meeting the sensory needs of autistic children and young people in CAMHS inpatient services, NDTi [3] More-than-words-supporting-effective-communication-with-autistic-people-in-health-care-settings.pdf (boingboing.org.uk) More than words: Supporting effective communication with autistic people in health care settings, Economic and Social Research Council [4] https://kids.frontiersin.org/articles/10.3389/frym.2021.554875 Double Empathy: Why Autistic People Are Often Misunderstood · Frontiers for Young Minds (frontiersin.org) [5] https://osf.io/5y8jw/ “Professionals are the hardest to trust” Supporting autistic adults who have experienced interpersonal victimisation, Amy Pearson, Kieran Rose and Jon Rees [6] s41252-021-00201-1.pdf (springer.com) Long-term ABA Long-term ABA Therapy is Abusive: A Response to Gorycki, Ruppel, and Zane, Gary Shkedy, Dalia Shkedy and Aileen H. Sandoval-Norton [7] Sensory environment — Neurodiverse Connection (ndconnection.co.uk) [8] FAQs 1 — Neurodiverse Connection (ndconnection.co.uk) [9] Embodied Education: Creating Safe Space for Learning, Facilitating and Sharing - Kay Louise Aldred and Dan Aldred is scheduled for publication Sept 1st, 2023. This is a repost of a blog originally posted here: https://ndconnection.co.uk/blog/can-school-ever-be-right-for-autistic-people?rq=aldred Original post date 20th April 2024. Pain Perspectives is an anthology that tells the stories of women’s bodies and their experiences of chronic pain and illness. It also reveals the deep wisdom held within the suffering.
The art, writing, and poetry from women around the world showcased in this book offers three clear messages. The first is that women are sick both metaphorically and physically. Lots of women. The second is that it is the patriarchal systems and structures in society are the origin of the sickness. Patriarchy hurts. The third is that the path of Goddess is both the medicine and the cure. Pleasure liberates. Read how Goddess and Goddess spirituality supports women to heal and find their voice, so that others may too. "Once again, Girl God books - and the courageous women who share what has been banished to the shadows, silenced, disparaged, and demonized - is a profoundly valuable gift to everyone who is being called to reintegrate our feminine receptive nature. Pain Perspectives is a beautiful sharing of how the pain of existing in a heart-and-soul deprived patriarchal paradigm has been endured - and has contributed to women’s wisdom, gifts, and soul’s evolution. A must read for anyone who has lived with pain, whether physical, emotional, or spiritual. Pretty much everyone. The women who traveled to the depths, transmuted their pain, garnered the wisdom, and rose to inspire others is an authentic depiction of the energy of the Goddess returning through each and every one of us. I recommend taking your time to receive each story in this book, as deeply as it was shared." -Mary Lane, author of Divine Nourishment & Meena “When first approached to write an endorsement for this book I felt quietly confident. I have been a practitioner of Classical Chinese medicine and somatic therapies for forty years, and pain is my compassion language. I know pain in all its forms both professionally and personally. So, all good, right? But the collection of essays, poems and art in this anthology is so visceral and on point that there was nothing easy about the read or the analysis. Chronic pain, institutionalized pain, cultural pain, all washing over us mentally, physically, and spiritually. All is beautifully explored and poignantly written here. And while we are neurologically wired to retract from pain, I do believe we need to feel it, name it, and stare it down in order to move past it. This important anthology will help us all to do that. Read it and cherish the awakened sensations as you would with your tongue playing with a loose tooth. And then we get up tomorrow and do what needs to be done.” -Gina Martin, author of the When She Wakes series (Sisters of the Solstice Moon, Walking the Threads of Time, She is Here), the Daughters of the Goddess series (Kiyia-Daughter of the Horse), and WomEnchanting, a compendium of sacred songs and chants "A powerful collection of women speaking their truths, sharing openly, honestly and with raw vulnerability on the pain of the world manifesting in their own bodies. Women’s pain is not an isolated problem or issue. It is a reflection of the world we live in - a world built on a foundation of fear, greed and hierarchical power where every major institution miserably fails both women and children. The authors’ personal stories shed new and necessary perspectives on women’s pain that I’m sure any reader will find both inspiring and empowering." -Trista Haggerty, Author of When the Dark Mother Calls Dear all, We find ourselves half way through this Eclipse pairing and I’ve been reflecting on the first action I’m scheduled to take after the new moon solar eclipse next Monday, which is to present a ‘new theology’ the following day, based on my workbook Making Love with the Divine; Sacred, Ecstatic and Erotic Experiences, online, to a theological conference taking place at Warwick University. Theology has been dominant in my thoughts, due to attending a feminist theology event and preparing for the conference talk. Both have taken me back into my academic discipline, and led to a deeper reimagining and reframing of the the Easter story over the weekend, based on this ‘new theology’ I’m forming; tangible divinity. For those of you interested in understanding more about theology, prayer, divinity and more helpful and embodied ways of reimaging the Easter story this email, in which I share my processed and thoughts, might interest you. In addition, at the end of the email I share some information about the practitioner training I’ve been facilitating at the Acorn this weekend and some future visioning for its expansion and embedding into societal statutory provision. Eclipses and the time around Easter and the astrological new year are always a period of profound change. I hope you are all coping with the twists and turns we are experiencing individually and collectively at this time. Sending love, Kay Study of the Divine.
This, spirituality & education - from neuroqueering & embodied perspectives - are my academic, professional & lived experience specialisms & expertise. The Future, from my perspective = #embodimentspirituality #embodiededucation #educateevolveembody #inandthrough #fleshyknowing #tangibledivinty #spirituality Simultaneously terrified & excited to be presenting a short paper about my second book @girlgodbooks Making Love with the Divine: Sacred, Ecstatic & Erotic Experiences at the Society for the Study of Theology Conference. May women's lived experience of Divinity be truly heard & lead the way in making theology relevant. More info #SST24 @sst_theology The Future = #embodimentspirituality #embodimenttheology #educateevolveembody #inandthrough #fleshyknowing #tangibledivinty #spirituality #makinglovewiththedivine #livedexperience #livedexperiencetheology #nowordstheology #prayer Big thanks to all who contributed to the research, art & offered anonymous lived experience shares. When enough of us: A) recognise the abusive & oppressive overarching culture & structure we live in and B) work on our nervous system regulation - moving out of functional freeze & dissociation, collapse & fawning - digesting sympathy energies of flight & fight which result from the thawing The solidarity, belonging & safety between us will result in a humane, humanitarian, humanity - in which such revolutionaries are the leaders, pioneers & visionaries of new society structures & global order. #goodfriday #crucifixion #trauma #nervoussystemhealth #humanitarian #humane #human #humanity #educateevolveembody #inandthrough #fleshyknowing #tangibledivinty #spirituality Future = #embodimentspirituality #embodiededucation Despair is a normal response to loss. Why have you forsaken me? Is a healthy expression when we have been subjected to abuse. Flee & overwhelm are normal nervous system responses to threat. A community who sees any member, but especially it's teacher, be subjected to torture & horror, would experience terror, freeze & survivor's guilt. On Holy Saturday we have the opportunity to pause, refocus & zoom out - looking at the bigger picture. And in doing so we PIVOT TO THE PERPETRATOR. Victim blaming & pathologisation of trauma responses divert attention away from the perpetrator & the choice they made to harm. The empire, its systems & institutions, was (& still is) the predator & abuser - actively hunting & killing the most humane, humanitarian, humans - peacemakers, status quo challengers, divergent free-thinkers, creatives. Holy Saturday is our shocking wake up call to our overarching cultural norms. We lay collapsed in the dark cave - the tomb/womb - of that realisation. #holysaturday #pivottotheperpetrator #depathologise #trauma #nervoussystemhealth #humanitarian #humane #human #humanity #educateevolveembody #inandthrough #fleshyknowing #tangibledivinty #spirituality Resurrection = humanity's embodiment post trauma. Mind & body come out of 'freeze'; dissociation, numbness & collapse, survival responses complete & there is restoration of the (co-)regulation; compassionate goodness, flow, human spirit - despite (& in spite) of the scars - individually & collectively. A humane & humanitarian humanity, living as & from the parasympathetic ventral vagal nervous system, simultaneously rises & descends #inandthrough healthy embodiment - as a #tangibledivinty - governed by #fleshyknowing, collectively liberated from the hell of abusive & oppressive overarching culture of empire, systems, institutions, governance & dogma. The start & end point is the body. Future = #embodimentspirituality #embodiededucation #educateevolveembody #trauma #nervoussystemhealth #humanitarian #humane #human #humanity #resurrection #eastersunday #newlife #risefromthedead #embodimenttheology #theology Doubting Thomas placing his hands on the scars, & Jesus, the trauma survivor turned thriver activist, saying yes to the request, offering co-regulation, role modelling & mentorship in trusting our own #feltsense discernment - aka #fleshyknowing - going #inandthrough embodiment - above all else.
* Interaction with scarred bodies & nervous system health will be the spiritual practice. 'Feed my lambs' & a community focus : a #tangibledivinty * Post resurrection, the 'risen' humane & humanitarian humanity will acknowledge that there is no separation between spiritual & human needs. * Ensuring that everyone has access to good food, clean water, warmth, shelter, movement, sanitation will be the devotional act. The start & end point is the body. Future = #embodimentspirituality #embodiededucation #educateevolveembody #trauma #nervoussystemhealth #humanitarian #humane #human #humanity #resurrection #embodimenttheology #theology #socialjustice Classrooms & community spaces where people go for emotional, psychological, social or spiritual support need to embed the two key concepts & modalities I teach: #embodimentspirituality & #embodiededucation
This is a photo from the weekend where I was facilitating the skills practice weekends for this year's Somatic Shamanism Energy Medicine Practitioner Cohort @acornretreat The training & education NORMALISES spiritual needs as basic human needs - the needs for connection, belonging, meaning & purpose. Rooted in #embodimentspirituality & #embodiededucation it is non doctrinal, non body bypassing, neurodivergent affirming, & crucially nervous system & trauma informed. Read more in my @girlgodbooks The pathway for learning, connection & meeting needs is #inandthrough the body. It depathologises emotions & sensation, holding the intention that wisdom is found in our body - our #fleshyknowing - & that #metcognition - thinking about thinking - can help us make sense of the body's #feltsense messages. The practitioner is the guide who offers coregulation - grounding & safety - creatively & neuroinclusively, flexibly supporting those they work with to connect to their #fleshyknowing - their #intuition & #instinct. I believe wholeheartedly that #embodiededucation & #embodimentspirituality are essential for a hopeful future & the resurrection of a humane & humanitarian humanity And so need to be FREE, accessible & embedded into society structures, institutions & statutory provision. I'm therefore advocating for #embodiededucation & #embodimentspiritualiy to: * be part of core statutory educational curriculum provision & services * be part of mental & physical health NHS intervention AND * form an alternative state funded spiritual community care based on our common #tangibledivinty that everyone can access as an alternative to dogmatic religion & the capitalist spiritual & wellbeing industry To do this I realise I need to rename the modalities - especially #somaticshamanism & #energymedicine - to bridge the worlds - I'm working on that! Thank you to @sls_daretodance & @kerry_walton222 for giving me the permission to post this beautiful photo. A Sacred Woman knows that she is the embodiment of the Sacred Feminine. She remembers that Goddess already exists within her: Goddess is her DNA. Indeed, a Sacred Woman reclaims herself as Goddess – a unique strand, frequency and incarnation of her – essential for the completion and wholeness of the spectrum of the collective Feminine.
Our bodies are the gateway to recalling this truth. Mentorship with Goddess is a workbook – a year-long programme – a rite of passage – especially useful for the transition into autonomous adulthood – and also for the menopause journey. The programme can be undertaken solo or as a group. The specific aim is growing Sacred Womanhood. Mentorship with Goddess is an embodied education and evolution, which combines metacognition, intuition, and instinct. It is principally about discovering, accepting, and loving yourself, and simultaneously protecting and vulnerably showing up as your whole Self in the world. The concrete reality of fully embodying the Sacred Feminine will become clear as you learn and evolve through the mentorship Goddess offers. No one can tell you what it will look or feel like – you discover it for yourself. Self-leadership, self-management, and self-direction, via internal wisdom, courage, and truth, are the gifts of Goddess. ''I am so excited by Kay Louise Aldred’s groundbreaking and liberating curriculum for exploring sacred womanhood and developing Goddess mentorship. She offers a powerful sacred process of deep holding, learning and growth for women at any stage of life. It is a compelling read containing important female wisdom, beautiful illustrations, detailed exercises and exquisite ceremony. It also offers invaluable information on understanding and working with trauma and our nervous system. Journeying through Kay’s book is life-changing and enhancing. I will be recommending this important work to my Goddess Luminary students and every woman I know.'' - Dr Lynne Sedgmore CBE, Founder and author of the Goddess Luminary Leadership Wheel, Priestess of Avalon and Poetess. |
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November 2024
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